HeyJared#ThereForME
ThereForME is a campaign founded by Karen and Emma, two carers for partners with very severe ME/Long Covid. ThereForME is calling for an NHS that's there for people with ME and Long Covid. Follow our Substack to stay up to date with the latest.
- Indexed issues, last 90 days
- 6
- Latest publication
- Sep 23, 2026
- Audience
- Checking…
- Earliest in this view
- Jul 7, 2026
Latest issues
ThereForME is now a registered charity (opens the original)
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We’ve got news! ThereForME is now a registered charity. Our work began on Substack, so it feels fitting that this is the first place we’re posting the news, directly to the supporters who have been with us throughout the journey.<a class="image-link image2 is-viewable-img" href="https://substackcdn.com/image/fetch/$s_!qz8r!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F0a28e4af-e982-4768-9c8f-
#ThereForME Update 35: awareness, art and action (opens the original)
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Hello to our subscribers old and new. August brought Severe ME Awareness Day, and with it a new report, statements and calls for action on the needs of those most severely affected — much of it painting a picture that will be all too familiar to many of you.We round up what was published to mark the day, some of the creative ways people are keeping ME and Long Covid visible year round, and, as ever, a few rays of light.Thanks for reading #ThereForME! Subscribe f
"Rationing care affects lives" (opens the original)
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Social care has made headlines lately following the appointment of our new Prime Minister, Andy Burnham. In our work with #ThereForME, we come across many people with ME and Long Covid who face challenges accessing social care support, as well as with the parallel NHS Continuing Healthcare (CHC) funding process. Today’s post shares the experiences of three contributors from across the UK.<div class="subscription-widge
#ThereForME Update 34: The mission hasn’t changed — but our advocacy must (opens the original)
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We’ve had plenty of reasons to reflect lately — in our #ThereForME team and the wider world: we have a new Prime Minister and Health Secretary, a couple of weeks ago it was the first anniversary of the Final Delivery Plan (an anniversary that passed largely unnoticed), and our #ThereForME team celebrated our second birthday.There have been notable changes in the two years since we founded #ThereForME: we’ve seen growing cross-party recognition that things need to change for people with ME; studi
How many people in the UK are affected by ME? (opens the original)
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Yesterday Andy Burnham, who previously served as Secretary of State for Health, and as Shadow Health Secretary in opposition, became our new Prime Minister. His government inherits the Final Delivery Plan for ME - and they will also inherit the problem this article describes. This week also marks one year since the Final Delivery Plan for ME was published. We’ll be reflecting on all of this - and #ThereForME’s second anniversary! - in a forthcoming blog post. In the meantime, we’re bringing you
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