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The Sickle Cell Podcast

Talking about all things sickle cell related, sharing warrior experiences and providing sickle cell related education. Support this podcast: https://podcasters.spotify.com/pod/show/thesicklecellpodcast/support

Podcast · By Sickle Cell 101 · English · Official site

Indexed episodes, last 90 days
4
Latest publication
Sep 22, 2026
Audience
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Earliest in this view
Aug 31, 2026

Latest episodes

  1. Episode · Sep 22, 2026

    What Good Care Looks Like for Children w/Sickle Cell: Milestones, Shared Decision-Making and the ER (opens the original)

    Episode notes · Positive tone

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    What should parents watch for at home, and when is it time to go straight to the ER? In this episode of our What Good Care Looks Like for Kids with Sickle Cell series, pediatric hematologist Dr. Jacob walks through what good care looks like for children with sickle cell disease, from shared decision-making as kids grow, to the red flags that mean it's time to seek care right away (fever, an enlarged spleen, priapism), to what a strong ER experience should look like for your child. Dr. Jacob is t

  2. Episode · Sep 15, 2026

    What Good Care Looks Like for Children w/Sickle Cell: Screenings, Labs, and What to Track (opens the original)

    Episode notes · Neutral tone

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    What does good care actually look like for kids with sickle cell disease? Part 2: Screenings, Labs, and What to Track In this episode of our What Good Care Looks Like for Kids with Sickle Cell series, pediatric hematologist Dr. Jacob dives into the screenings and labs every family should know. She covers why transcranial Doppler stroke screening is non-negotiable, why penicillin remains a critical preventative measure, emerging neurocognitive screening for young children, and organ-function chec

  3. Episode · Sep 8, 2026

    What Good Care Looks Like for Children w/Sickle Cell: First Steps and Medical Home (opens the original)

    Episode notes · Positive tone

    Read excerpt

    What does good care actually look like for kids with sickle cell disease? In this episode of our What Good Care Looks Like for Kids with Sickle Cell series, pediatric hematologist Dr. Jacob breaks it down. She covers what to do the moment you get the diagnosis, building your child's medical home, and putting together the full care team, from specialists to social workers to school support. Dr. Jacob is the Director of the Pediatric Sickle Cell Program at Riley Pediatric Cancer and Blood Disorder

  4. Episode · Aug 31, 2026

    Sickle Cell + Blue Therapy (opens the original)

    Episode notes · Neutral tone

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    This episode features Damika “Dami” Jones from Netflix’s Blue Therapy. Dami and her husband, Jermaine, faced a deeply personal decision involving sickle cell disease. She shares the story behind their decision and reflects on how her sister’s experience living with sickle cell has inspired and shaped her.

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