HeyJaredThe Rare Mum Chronicles
The raw, honest truths of disability parenting as a mum newly navigating the world of rare genetic disorders. Our journey with Rett Syndrome.
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- Aug 20, 2026
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On turning 40, changed plans and unclear futures (opens the original)
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Life looks a lot different at 40 than I thought it would. Actually, to be honest, I’m not sure I ever really imagined myself at age 40. I never had a master plan in mind for my future: I just wasn’t one of those people who grew up knowing exactly what they wanted to do with their life. There were times I thought I might want a family and times I didn’t, times I really wanted a serious relationship and times I wasn’t sure I believed in marriage. Times where I felt excited about a specific career
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