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The POTScast

Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone!

Podcast · By Standing Up to POTS, Inc. · English · Official site

Indexed episodes, last 90 days
10
Latest publication
Sep 7, 2026
Audience
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Earliest in this view
Jul 4, 2026

Latest episodes

  1. Episode · Sep 7, 2026

    Michelle co-founded CANrise19 to help Canada’s COVID vaccine injured (opens the original)

    Episode notes · Positive tone

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    Michelle was a busy mom, business owner and back country adventurer whose life changed dramatically in the 36 hours following her second COVID shot. After finding little help locally in Canada, she traveled to the US for visits with leading specialists in dysautonomia, MCAS, small fiber neuropathy and more. She recounts some of the treatments she has had -- including IVIg, EBOO, and even brain surgery -- and challenges encountered. She ultimately co-founded CANrise19.com, a non-profit to bring s

  2. Episode · Aug 30, 2026

    Four Insights for Providers with Dr. Kirti Sivakoti, MD (opens the original)

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    Pediatric dysautonomia expert Dr. Kirti Sivakoti, MD, is a pediatrician specializing in complex chronic illness, Associate Professor of Pediatrics at University of Utah, and Associate Medical Director of the Pain and Autonomic Symptoms Evaluation (PAUSE) Program at Primary Children's Center. In this episode she shares findings and lessons from one case report and 3 recent research publications: Impact of Excessive Postural Tachycardia on Disability in Youth with Orthostatic Intolerance, in Journ

  3. Episode · Aug 23, 2026

    When “Inactive” Ingredients Aren’t: The ICU stay that inspired ExciIQ, with Nicole & Jeff Allen and Mike Brook (opens the original)

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    For patients with medication hypersensitivities, figuring out exactly what is in a medication can be surprisingly difficult. In episode 247 of The POTScast, data scientist Mike Brook discussed research showing that the excipient, or “inactive ingredient,” lists in DailyMed drug labels were internally inconsistent in 39% of 100 commonly prescribed drug formulations examined. For patients who react to excipients and rely on these labels to choose safer formulations, inaccurate, conflicting or conf

  4. Episode · Aug 15, 2026

    Lyme disease and MCAS Q&A with Dr. Tania Dempsey as part of Mast Cell Matters series (opens the original)

    Episode notes · Positive tone

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    In this episode Dr. Dempsey answers listener questions about Lyme disease, sharing why it can be complex, her treatment approach at different stages, how she starts treatment on highly reactive MCAS patients, thoughts on the new Lyme vaccine, SOT therapy and more. Dr. Dempsey's episode discussing SOT therapy in more depth can be found here. Dr. Dempsey's website is https://drtaniadempsey.com/ If you have questions for Dr. Dempsey about mast cells and related topics, you can send them to research

  5. Episode · Aug 8, 2026

    Emily on her daughter’s 20-year medical Odyssey, faith, EWOT and more (opens the original)

    Episode notes · Positive tone

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    Emily's daughter had sensitivities since a very young age. Emily recounts their journey with mysterious symptoms, good and bad medical encounters, conventional and unconventional treatments, faith and prayer, an unfortunate drug reaction, progress and setbacks, and how her family has coped through it all. Here are the links for the mentioned RTHM Intelligence platform and the Long COVID Treatment Guide. If you liked this episode, we hope you will click subscribe so that you don't miss an episode

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