The Economics of Survival
Living with Long COVID and ME/CFS means every decision runs through a cost-benefit analysis you never asked for. This publication applies that framework to chronic illness, disability, politics, and culture. Not inspirational. Honest.
- Indexed issues, last 90 days
- 3
- Latest publication
- Sep 21, 2026
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- Earliest in this view
- Aug 11, 2026
Latest issues
The Girl We Lost (opens the original)
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I started writing the lyrics for this song on July 24, 2026. It was just 48 hours after we had to say goodbye to Genie.The pain was still raw. I felt lost. I didn’t really know what I wanted to say. I just knew I needed to write something.I’ve gone back to it many times over the last two months. There have been different drafts, different words, different versions. Early this morning, while the pain was bad and I couldn’t sleep, I went back to it one more time.And I finished it.I think it captur
Four Weeks (opens the original)
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There is a version of the last four weeks that is hard to explain to a healthy person. I will try anyway.On July 21st, after twenty-one years, my employer medically separated me. Twenty-one years is not a job. It is an identity, a structure, a reason to get up. It is the answer to the question people ask at parties. Gone. Not by my choice.On July 22nd, Genie died. Our first girl. Eight years old, from the same litter as her brother Geno, who is now walking the house looking for her. She was a da
Twelve Percent (opens the original)
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I am twelve percent through The Legend of Zelda: Breath of the Wild. I started the Switch 2 Edition when the console launched. That was fourteen months ago.For a healthy player, twelve percent in fourteen months would be a joke. A running gag about the backlog. For me it is closer to a personal record. I have friends who finished this game in three weeks a decade ago. I am not racing them. I am not racing anyone. Twelve percent is what the budget allowed.I wrote before about the tools that fit.
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