HeyJaredThe CFRI CF Community Voices Podcast
CFRI's CF Community Voices is a video podcast series created by and for the cystic fibrosis community.
- Indexed episodes, last 90 days
- 7
- Latest publication
- Aug 26, 2026
- Audience
- Checking…
- Earliest in this view
- Jul 15, 2026
Latest episodes
NTM Infections In Cystic Fibrosis — Elaine Cagnina, MD, PhD (Audio) (opens the original)
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This podcast was recorded at CFRI's Cystic Fibrosis Adult Retreat in August, 2026. Non-tuberculous mycobacteria (NTM) are slow growing bacteria that can colonize the lungs of people with cystic fibrosis (CF). Due to the fact that NTM can be resistant to many antibiotics, treating this pathogen can be challenging for people with CF. In this podcast, Elaine Cagnina, MD, PhD explains what NTM is, how it is diagnosed and treated, and what questions to bring to your CF team if you suspect you have NT
NTM Infections In Cystic Fibrosis — Elaine Cagnina, MD, PhD (Video) (opens the original)
Read excerpt
This podcast was recorded at CFRI's Cystic Fibrosis Adult Retreat in August, 2026. Non-tuberculous mycobacteria (NTM) are slow growing bacteria that can colonize the lungs of people with cystic fibrosis (CF). Due to the fact that NTM can be resistant to many antibiotics, treating this pathogen can be challenging for people with CF. In this podcast, Elaine Cagnina, MD, PhD explains what NTM is, how it is diagnosed and treated, and what questions to bring to your CF team if you suspect you have NT
Updates on Phage Therapy to Treat CF Pathogens — Daria Van Tyne, PhD (Audio) (opens the original)
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Phage therapy is an emerging area of research that offers people with cystic fibrosis (CF) a promising new approach to treating multidrug resistant infections beyond traditional antibiotics. In this podcast, CFRI-funded research, Daria Van Tyne, PhD, explains the science behind phage therapy, shares case examples of its use in people with CF, and discusses important considerations for patients and families interested in exploring this potential treatment with their care team. For more informatio
Seeking Answers—Reflections On A Late Cystic Fibrosis Diagnosis (Audio) (opens the original)
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Everyone's journey to a cystic fibrosis (CF) diagnosis is unique. For some, CF is identified before birth or through newborn screening. For others, the path to diagnosis is much longer, marked by years of unanswered questions, misdiagnoses, and uncertainty. In this podcast, four adults with CF share their personal journeys to receiving a late diagnosis. Reflecting on their experiences from childhood to the present, they describe how their CF-related symptoms were repeatedly attributed to other c
Seeking Answers—Reflections On A Late Cystic Fibrosis Diagnosis (Video) (opens the original)
Read excerpt
Everyone's journey to a cystic fibrosis (CF) diagnosis is unique. For some, CF is identified before birth or through newborn screening. For others, the path to diagnosis is much longer, marked by years of unanswered questions, misdiagnoses, and uncertainty. In this podcast, four adults with CF share their personal journeys to receiving a late diagnosis. Reflecting on their experiences from childhood to the present, they describe how their CF-related symptoms were repeatedly attributed to other c
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