HeyJaredRare Rebels™
The Rare Rebels™ Podcast shares raw, unscripted conversations with patients, caregivers, advocates, and researchers who are changing the future of rare disease.
- Indexed episodes, last 90 days
- 1
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- Aug 9, 2026
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- Aug 9, 2026
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Episode 9: Jeevan Mann | Research Through Lived Experience (opens the original)
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Jeevan Mann understands Ehlers-Danlos syndrome from two perspectives. He lives with one of the rarest forms of EDS and also works as a researcher studying the condition. In this conversation, Jeevan shares his path from patient to researcher and how his own experiences have shaped the way he approaches the science. We talk about what lived experience can contribute in the laboratory, why patients can bring insights that complement scientific and clinical expertise, and what it means to research
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