Rare Kidney Source
Your Podcast for Rare Kidney ConversationsLife with a rare kidney disease can be complex, isolating, and often misunderstood.
- Indexed episodes, last 90 days
- 2
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- Sep 10, 2026
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- Earliest in this view
- Jul 30, 2026
Latest episodes
Managing Disease: Important Considerations, Conversations, Decisions (opens the original)
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A rare kidney disease diagnosis can leave you with more questions than answers. In this episode of The Rare Kidney Source Podcast, nephrologist Dr. Sayna Norouzi joins patients Lindsey and Sloane to share practical advice for navigating the first weeks after a C3G or primary IC-MPGN diagnosis. From organizing biopsy reports and medical records to understanding test results, preparing for appointments, and weighing treatment options, they break down the steps that can help you feel more informed
C3G & Primary IC-MPGN 101 (opens the original)
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On this episode of the Rare Kidney Source podcast, Lilly, a person living with C3G, and Dr. Joshua Thurman highlight why early diagnosis, ongoing lab monitoring, and open communication between a patient and their care team are so important. For more information, visit https://rarekidneyandyou.com/ The Rare Kidney Source Podcast is produced by Believe Limited and made possible by Biogen. The following Biogen-supported program is intended for informational and educational purposes only and is not
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