HeyJaredRare Disease Girl
I want to help you save your own life. RDG is a digital atlas for navigating our inevitable challenges: personal memoir, health systems, mental wellness, patient-empowerment, life-saving tips, and motherhood.
- Indexed issues, last 90 days
- 10
- Latest publication
- Sep 27, 2026
- Audience
- Checking…
- Earliest in this view
- Aug 13, 2026
Latest issues
Falling (opens the original)
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This newsletter is a reader-supported publication. And I’m quite close to being a Substack Bestseller. I’m offering a discount til I reach my goal! If you find value in this AI-free (sorry for any typos), deeply researched, and profoundly vulnerable work, please consider becoming a paid subscriber. For way less than the cost of a latte, paid subscriptions are the fuel that keeps me doing this work. Thank you for your support!Get 20% off for 1 year</
Awareness Saved My Life (opens the original)
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This newsletter is a reader-supported publication. And I’m quite close to being a Substack Bestseller. I’m offering a discount til I reach my goal! If you find value in this AI-free, deeply researched, and profoundly vulnerable work, please consider becoming a paid subscriber. For way less than the cost of a latte, paid subscriptions are the fuel that keeps me doing this work. Thank you for your support!Get 20% off for 1 year<div clas
Pop Quiz - Do you know the name of my rare disease? (opens the original)
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This newsletter is a reader-supported publication. And I’m quite close to being a Substack Bestseller. I’m offering a discount til I reach my goal! If you find value in this AI-free, deeply researched, and profoundly vulnerable work, please consider becoming a paid subscriber. For way less than the cost of a latte, paid subscriptions are the fuel that keeps me doing this work. Thank you for your support!Get 20% off for 1 year<div clas
3x3 Thursday - On Doing (opens the original)
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This newsletter is a reader-supported publication. And I’m quite close to being a Substack Bestseller. I’m offering a discount til I reach my goal! If you find value in this AI-free (apologies for the typos), deeply researched, and profoundly vulnerable work, please consider becoming a paid subscriber. For way less than the cost of a latte, paid subscriptions are the fuel that keeps me doing this work. Thank you for your support!Get 20% off for 1 ye
What would be the last thing you ever watch? (opens the original)
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This newsletter is a reader-supported publication. And I’m quite close to being a Substack Bestseller. I’m offering a discount til I reach my goal! If you find value in this AI-free, deeply researched, and profoundly vulnerable work, please consider becoming a paid subscriber. For way less than the cost of a latte, paid subscriptions are the fuel that keeps me doing this work. Thank you for your support!Get 20% off for 1 year<div clas
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