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PPMD's Living Duchenne

PPMD’s Living Duchenne podcast brings together community voices to talk about navigating the Duchenne experience.

Podcast · By Parent Project Muscular Dystrophy · English · Official site

Indexed episodes, last 90 days
2
Latest publication
Sep 10, 2026
Audience
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Earliest in this view
Jul 8, 2026

Latest episodes

  1. Episode · Sep 10, 2026

    PPMD Living Duchene: Caregiver Burnout: Fostering Dialogue (opens the original)

    Episode notes · Positive tone

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    Join us for another great episode in our Living Duchenne podcast series. This season we are bringing folks together to talk about caregiver burnout. Our fantastic host, Rachel Poysky, sits down with Duchenne Mom, Joanna Johnson, for a spirited and candid conversation about caregiving in the midst of raising a young adult. Rachel and Joanna dig into recognizing the signs of burnout, setting boundaries and limits for yourself with your family, and getting clear on what you need that is 100% FOR YO

  2. Episode · Jul 8, 2026

    PPMD Living Duchenne: Raising an Independent Child: Young Adults (opens the original)

    Episode notes · Positive tone

    Read excerpt

    Welcome to our third episode in this season's PPMD podcast, Living Duchenne. Our topic is Raising and Independent Child. We welcome Adam Wechsler, a 29-year old man living with Duchenne, and Gretchen Agans, mom to Liam, a young adult living with Duchenne to talk about building independence and purpose in this time where young people are transitioning into early adulthood. Our host Rachel Poysky talks with Adam and Gretchen about remaining open to the many opportunities that exist for young men l

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