HeyJaredNavigating PVS
Pediatric Pulmonary Vein Stenosis (PVS) is rare and life-changing—but you don’t have to face it alone. Join creator and host Jen Joly, a PVS mom and advocate, as she shares real stories of resilience, hope, and community from families navigating this devastating diagnosis.
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- Jul 9, 2026
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- Jul 9, 2026
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When PVS Leads to Transplant (opens the original)
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In this episode, Jen Joly is joined by fellow PVS mom Crystal Costante for a powerful conversation about one of the most difficult topics in the PVS community: lung transplant. Crystal shares the extraordinary story of her son Nathan, who was diagnosed with complex congenital heart disease at birth, later developed Pulmonary Vein Stenosis, and became the first infant with PVS at his Canadian hospital to receive a double lung transplant. Together, Jen and Crystal discuss the moment transplant fir
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