HeyJaredMitoAction Expert Series
Our monthly educational webinars feature guest speakers addressing topics important to the mito community, giving patients and families unprecedented access to leading clinical experts
- Indexed episodes, last 90 days
- 8
- Latest publication
- Sep 14, 2026
- Audience
- Checking…
- Earliest in this view
- Sep 3, 2026
Latest episodes
NARP: Understanding the Spectrum of Disease (opens the original)
Read excerpt
NARP (Neuropathy, Ataxia, and Retinitis Pigmentosa) is a mitochondrialdisorder with a broad and variable clinical spectrum that can affect the nervous system, vision, movement, swallowing, cognition, and energy. This talk will explore the history and genetics of NARP, how genetic confirmation informs diagnosis and care, and how symptoms such as ataxia and energy impairment can manifest in ways that are often misunderstood. We will also discuss current approaches to symptom management, multidisci
Understanding the FALCON Study: Investigating a Potential Therapy for Mitochondrial Disease (opens the original)
Read excerpt
This presentation will dive deep into the “Falcon Study” to explain what this study is, who qualifies, the mechanism of action of the compound being studied, and how its efficacy is measured.
Understanding the potential of a “CPK Meter” (opens the original)
Read excerpt
IVDS is a biotech company developing a CPK meter called, CPK Now. This small, handheld device will allow patients to check their creatine kinase (CK) level quickly from a fingerstick sample, so they and their care team can react sooner and monitor their care more effectively. This presentation will discuss the science behind the technology, how this meter could be used, where the research/development currently stands, and what the pipeline could look like.
Simplifying the Mitochondrial Medication Experience Through Compounded Mito Cocktails (opens the original)
Read excerpt
As the incidence of mitochondrial disease continues to rise, patients having a better understanding surrounding their therapies remains critical. Compounding pharmacies play a key role in simplifying medication regimens while providing affordable options. This presentation will explore the importance of compounding pharmacies while highlighting how ACHC rare disease accredited compounding pharmacies employ clinical teams that support both patients and clinicians during their treatment journey.
Lactic Acid & Mitochondrial Disease: When there’s too much of a good thing (opens the original)
Read excerpt
Lactic acid is an essential metabolite in our body, helping move energy from tissues that generate it, to the tissues that need it the most. We will talk about what lactic acid is supposed to do and how that gets dysregulated in mitochondrial disease. Objectives include naming causes of high lactate, evaluating lactate metabolically & listing downstream impacts of high lactate.
Publishing over time
Last 90 days. Choose a month to open its work.
Recurring subjects
Named in the text we hold. One piece can cover several.
Audience
No verified audience measurement yet.
About this data
Counts cover the work we have indexed. Tone needs enough text and a confident classification. Excerpts and episode notes are not full articles or transcripts.
Identity or attribution wrong? Suggest a correction.