HeyJaredmedConfidential’s Substack
medConfidential defends the confidentiality you desire for your medical records.
- Indexed issues, last 90 days
- 8
- Latest publication
- Sep 6, 2026
- Audience
- Checking…
- Earliest in this view
- Jul 6, 2026
Latest issues
The Adolescent Health Study (opens the original)
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The Adolescent Health Study will ask teenagers about their mental health, their families and their sexual experiences, and link the answers to their school, health and tax records. It will make them promises. The people building it have already broken promises of exactly this kind – to Scottish schoolchildren, to Biobank volunteers, and to 55 million NHS patients – and consequences have never reached the shared culture behind all three projects. The children being asked about adolescence in 2027
Clinical Trials (opens the original)
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The focus on “more trials” is about helping a number go up, not helping those who give a damn about actually curing the condition.“More trials” merely meaning more money will faceplant the same way UK Biobank has (we’ll have more on them soon).You can read a lot more detail at medConfidential.org
NHS England makes another privacy mess (and still hides abuses from patients) (opens the original)
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It seems to be NHS England’s day for bad-news management – as the new BBC investigation finds that a creep shared screenshots of patient records for fun.A few months ago NHS England loudly wanted a crackdown on creeps accessing records. Last week they quietly changed their minds.Guidance that was supposed to stop unlawful access to your medical notes has been revised, and the revision gives creeps, voyeurs and ghoul
The previous Government's consultation on more data brokers – envisaging a future that is already past (opens the original)
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The new Government has inherited an open consultation on allowing data brokers to be ever more creepy, to buy and sell more data with less regulation. It’s coated in the language of helping individuals, but the focus is giving data brokers more permission to sell data about you, and giving you less say in the process.The consultation assumes data must be copied to be useful, but on-device AI makes copying unnecessary, so DSIT was envis
The start of medConfidential’s Week Two briefing to Ministers (opens the original)
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New ministers will have had their Week One briefings, learning what the NHS and officials wants them to know and think.The culture of NHS England, an organisation soon to be abolished, is that whatever is done is always the best it could be, and that whether the outcome is any good should never be questioned. Cover-ups are better than bad headlines, a culture which drives many decisions about data centralisation. Data decisions are made in a Gray meeting room where past precedent protects voyeur
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