HeyJaredLupus in Community
Strengthening the lupus and chronic illness community through education, inspiration, and connection. From practical wellness resources to real stories of hope on our podcast, we are here to ensure you feel seen, supported, and stronger.
- Indexed issues, last 90 days
- 14
- Latest publication
- Sep 30, 2026
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- Jul 17, 2026
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Lupus - Diagnosed Young vs. Diagnosed Older (opens the original)
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Some of us were diagnosed as kids, before we had the words for what was happening to our bodies and some diagnosed as adults, after a life had already started taking shape around us. Neither path is easier, they’re just different kinds of hard, and this week, four Villagers were generous enough to let us sit inside both.If you’ve been following my general September theme of the long haul of living with lupus, this last essay for the month allows me to feature community voices, to hear what it’s
When Hormones Shift, So Does Lupus. Live with Fatimah Ali, PhD-Lupus Health and Flame & Flare | Simla Somturk (opens the original)
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Thank you , , , and many others for tuning into my live video with ! Join me for my next live video in the app.<div class="install-
Lupus, Hormones, and Menopause: (opens the original)
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<img alt="" class="sizing-normal" height="2059" src="https://substackcdn.com/image/fetch/$s_!KqzX!,w_1456,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F3b335217-5548-41db-8254-bae91989ddf8_2481x3508.
Steroids and Bone Health (opens the original)
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Video by Gustavo Fring on pexels.comYou just got diagnosed with lupus or maybe a different autoimmune disease or chronic illness. The medications prescribed to you include a type of glucocorticoid (Prednisone, Methylprednisolone, Dexamethasone, Cortisone, Triamcinolone). Let us say it was prednisone or methylprednisolone (medrol) for example. Depending on your disease status, your labs, and inflammation you might have been required to take a daily dose of 25 mg of prednisone. As time progresses,
The Long Game: What Decades of Lupus Can Mean for Kidneys, Heart, and Lungs (opens the original)
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National Healthy Aging Month usually speaks to people optimizing a body that's been reliable so far with supplements, mobility, and "aging gracefully." For the lupus, community, and chronic illness community for that matter, aging isn't a fresh chapter of optimization. It's aging on top of a body that's already been managing inflammation, unpredictability, and loss for years, sometimes decades. September sits in that gap, not generic wellness-for-older-adults content, but what aging actually loo
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