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Lucky Brain Tumor Podcast

On the Lucky Brain Tumor Podcast, Emily invites people to share their acoustic neuroma stories, from the hunt for a diagnosis to creating a new normal after treatment.Emily was diagnosed with an acoustic neuroma (or vestibular schwannoma) at 27 - a rare, benign brain tumor.

Podcast · By Emily Truell · American English · Official site

Indexed episodes, last 90 days
2
Latest publication
Aug 25, 2026
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Jul 30, 2026
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  1. Episode · Aug 25, 2026

    Episode 10: Katy's Story (opens the original)

    Episode notes · Positive tone

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    In this episode Katy discusses her experience of being diagnosed with a 4 cm acoustic neuroma while attending college. Despite having to fully relearn how to walk, Katy bounced back from her surgery quickly and was back to her regular life in short order. Katy did experience regrowth of her tumor on her facial nerve and did radiation treatment that has been successful at arresting tumor growth. She has since found out she actually has mosaic NF2 (neurofibromatosis type two) which includes other

  2. Episode · Jul 30, 2026

    Episode 9: Betty's Story (opens the original)

    Episode notes · Positive tone

    Read excerpt

    In this episode Betty shares her incredible story when she was diagnosed as a surprise while looking into dental concerns. Betty chose radiation to treat her 2.2 cm acoustic neuroma as she is a professional musician and wanted to retain her hearing if possible. She had wonderful treatment results and kept all of her hearing! Betty navigated balance struggles as well as other symptoms. Throughout her entire journey the Acoustic Neuroma Association remained an incredibly important resource and sup

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