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Let’s talk about epilepsy

Welcome to —Let’s Talk about Epilepsy - your podcast to hear real stories, expert insights, and honest conversations about life with epilepsy.

Podcast · By Young Epilepsy · English · Official site

Indexed episodes, last 90 days
3
Latest publication
Sep 9, 2026
Audience
Checking…
Earliest in this view
Jul 22, 2026

Latest episodes

  1. Episode · Sep 9, 2026

    Harder to manage epilepsy: moving into adult healthcare (opens the original)

    Episode notes · Positive tone

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    In this episode of the Young Epilepsy Podcast, we explore the transition from children’s to adult services for young people with harder-to-manage epilepsy. Host Joe Paternoster, Assistant Psychologist at Young Epilepsy, is joined by Neil Williamson, Safeguarding Trustee at Dravet Syndrome UK and former children’s epilepsy nurse; Nicky Heenan, Children’s Neurology Nurse and joint lead on the transition section of the NHS England Epilepsy Bundle of Care; and Denise Murphy, whose daughter Lucy has

  2. Episode · Aug 19, 2026

    Venting (opens the original)

    Episode notes · Positive tone

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    What really frustrates young people about living with epilepsy? In this honest and unfiltered episode of Let's Talk About Epilepsy, host Cam is joined by members of Young Epilepsy's Youth Voice Network: Hattie, Sophie and Spike. Together, they create a safe space to vent about the realities of living with epilepsy and the challenges that often go unseen. From lack of understanding in schools and workplaces to navigating friendships, dating, independence and public transport, the conversation shi

  3. Episode · Jul 22, 2026

    Harder to Manage Epilepsy: Could VNS Therapy Help? (opens the original)

    Episode notes · Positive tone

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    In this episode of the Young Epilepsy Podcast, we explore Vagus Nerve Stimulation (VNS) therapy and how it can help children and young people with harder to manage epilepsy. Host Kirsten McHale, Head of Healthcare at Young Epilepsy, is joined by Dr Das, Paediatric Consultant Neurologist at Great Ormond Street Hospital, and Hattie, a member of the Youth Voice Network who has been living with a VNS device for several years. Together, they explain how VNS works, who it might be suitable for, and wh

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