HeyJaredI'm Aware That I'm Rare: the phaware® podcast
I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world.
- Indexed episodes, last 90 days
- 20
- Latest publication
- Sep 8, 2026
- Audience
- Checking…
- Earliest in this view
- Jul 7, 2026
Latest episodes
Abby and Ari Borstein - phaware® interview 589 (opens the original)
Read excerpt
PH Didn't Just Change One Life, It Changed an Entire Family When pulmonary hypertension changed their father, Eric Borstein's life, sisters Abby and Ari refused to let the disease write the ending. Instead, their family turned heartbreak into hope by creating a community " Where is EB?" 5K dedicated to raising awareness, honoring their dad, and supporting others facing the same rare disease. What began as one family's response to unimaginable adversity has grown into something much bigger, a mov
Episode 589 - Abby and Ari Borstein (opens the original)
Read excerpt
PH Didn't Just Change One Life, It Changed an Entire Family When pulmonary hypertension changed their father, Eric Borstein's life, sisters Abby and Ari refused to let the disease write the ending. Instead, their family turned heartbreak into hope by creating a community " Where is EB?" 5K dedicated to raising awareness, honoring their dad, and supporting others facing the same rare disease. What began as one family's response to unimaginable adversity has grown into something much bigger, a mov
Donna Wallace Harmon - phaware® interview 588 (opens the original)
Read excerpt
She Didn't Just Survive Being Rare. She Made Meaning Out of It. PH patient, Donna Wallace Harmon can't fly. She lives with limits. She knows tomorrow isn't guaranteed. But Donna refuses to live waiting for "someday." Her motto is simple and defiant: Do the best I can when I can, because nobody knows what tomorrow holds. My name is Donna Wallace Harmon. I was born in Jamaica, but I came to Canada in my early 20s. When I was born, I was a preemie with a VSD, a hole in my heart, but it wasn't repai
Episode 588 - Donna Wallace Harmon (opens the original)
Read excerpt
She Didn't Just Survive Being Rare. She Made Meaning Out of It. PH patient, Donna Wallace Harmon can't fly. She lives with limits. She knows tomorrow isn't guaranteed. But Donna refuses to live waiting for "someday." Her motto is simple and defiant: Do the best I can when I can, because nobody knows what tomorrow holds. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials . Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware Share you
Carolyn Mathur - phaware® interview 587 (opens the original)
Read excerpt
Out of Breath, Not Out of Dreams: One Woman's PH Journey Across 79 Countries Carolyn Mathur was told she had only hours to live. Then days. Then months. Instead of waiting to die, she chose to live—loudly, joyfully, and without apology. Nearly three decades later, she's still here, traveling the world, and proving that hope can outlive even the bleakest diagnosis. My name is Carolyn Mathur. I'm 63. I live in Port Perry, Ontario right now. Originally, born in Nova Scotia and then, Montreal and th
Publishing over time
Last 90 days. Choose a month to open its work.
Recurring subjects
Named in the text we hold. One piece can cover several.
Audience
No verified audience measurement yet.
About this data
Counts cover the work we have indexed. Tone needs enough text and a confident classification. Excerpts and episode notes are not full articles or transcripts.
Identity or attribution wrong? Suggest a correction.
See coverage about I'm Aware That I'm Rare: the phaware® podcast