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Esther

Young Onset Parkinson’s Disease is probably the least interesting thing about me

Newsletter · By Esther · Official site

Indexed issues, last 90 days
6
Latest publication
Sep 4, 2026
Audience
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Earliest in this view
Jul 7, 2026

Latest issues

  1. Issue · Sep 4, 2026

    September (opens the original)

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    September has always been an important month to me. My Father’s birthday, my wedding, the official end of Summer, the transition to Fall. September isn’t really special by itself, but it reminds you that something is changing. I suppose I noticed change less before Parkinson’s. The seasons slipped by acknowledged but not dramatically. Everything felt ordered and uneventful. Now everything feels more, I don’t know, more meaningful, and unpredictable. Two years ago I went to Grand Rapids Michigan

  2. Issue · Sep 2, 2026

    Kindness (opens the original)

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    Woke up today, at my usual 4AM to a CEO/Founder of a biotech company in my Linkedin DM’s calling me “unkind” and then blocking me, apparently while I slept. This isn’t the first time this has happened and it won’t be the last. This particular “Innovator” actually said exactly what the last did. They have developed something that can “help” me, something that has successfully reversed symptoms for loads of people with various Neurodegenerative diseases, based on science. My response and I quote “

  3. Issue · Aug 14, 2026

    Every Story Has Three Sides (opens the original)

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    I started posting on TikTok pretty soon after my February 2023 Parkinson’s diagnosis. I was already following some other people with Parkinson’s and had messaged them questions along the way. When my official diagnosis came, I was already part of a community. Sharing my experience wasn’t planned, I just felt like I had gone through something, and I needed to talk about it. I didn’t have any followers, just a few friends, none of whom had Parkinson’s. So, when I made my first videos it was just m

  4. Issue · Aug 11, 2026

    The Need to Believe (opens the original)

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    In mid 2020, during what was arguably the most collectively stressful year of my generation of humans, I started waking up feeling like I was shaking…inside. My sleep was bad, my heart raced after I ate, I was cold, a lot. I had a pain, well, I had a few pains. The first was probably in my gut, I was having a lot of pain, in my lower left side, it took me awhile to figure out why, constipation. Sometimes I would sit in my car and cry, takeing laxatives to try and make myself poop. I also had pro

  5. Issue · Aug 6, 2026

    The Weight of Never Giving Up (opens the original)

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    “I give up” I said, as I collapsed backwards into the chaise. I was frustrated after an early morning that began and now ended, on an uncooperative and painful leg. I was thinking about the medication. The way it has become this Rubik’s cube of different combinations of drugs and times and doses. The looming excitement mixed with dread, that now starts days in advance of a neurologist visit. He’s going to ask me what’s going on, I don’t even know myself. I just know it hurts and nothing is worki

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