HeyJaredBrainstorm Health
Brainstorm Health is where lived experience meets understanding. We explore the real questions, patterns, and moments that emerge for patients and caregivers navigating serious illness—and what they reveal about how support can be better designed.
- Indexed issues, last 90 days
- 11
- Latest publication
- Sep 30, 2026
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- Aug 22, 2026
Latest issues
Introducing Kindling (opens the original)
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If you’re living through a serious illness or loving someone through it, you know what it’s like to have so many roles and all the performance around it.For them you’re fine. For the kids everything’s going to be okay. At work you’re hanging in there, and at appointments you’re basically a spreadsheet of symptoms and dates and medication names.Then it’s late at night, you’re up, everyone is asleep and you’re spinning. Your day was tough, you’re deep in Reddit, and you just want someone to get wh
Please Hear the Clock We Hear (opens the original)
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To our oncology teams,When a family hears the word glioblastoma, a clock starts ticking.We know you hear it too. You know this disease. You know what the diagnosis means, how quickly things can change, how narrow some treatment windows can be.But I am asking you to understand what that clock sounds like from our side.It is loud.From the moment we hear the diagnosis, there is an almost physical need to move.Who is the best surgeon?When can surgery happen?When will pathology be back?When do we see
You Have a Brain Tumor. Now Learn a New Language by Tomorrow. (opens the original)
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The first days after a brain tumor diagnosis are an education nobody asked for, delivered during an emotional state almost designed to make learning impossible.“We just got the diagnosis. What now?”That question appears in different forms again and again in conversations with families facing glioblastoma.Sometimes it is even more basic.“What is GBM?”“Just got a GBM diagnosis.”And sometimes you can hear the urgency in the question.“We just got the news. What are the three most important questions
I Wish We Had Ember Health When Karen Was Diagnosed (opens the original)
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You don’t know what questions to ask when you don’t even understand what you’re facing.On May 12, 2023, my 52nd birthday, I took my wife, Karen, to the emergency room.A few weeks earlier, she had told me she was forgetting her words. I thought maybe she was diabetic, or maybe it was menopause. Maybe there was some relatively simple explanation for the strange things we had been noticing.There wasn’t.Within hours, we were told Karen had a brain tumor.Four days later, she was having brain surgery.
The New Questions GBM Families Are Asking Us Now (opens the original)
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Three months of new conversations reveal a shift from understanding the disease to managing everything it demandsThe Ember GBM Companion has now grown to 4,643 conversation threads representing 3,717 unique families, with 58,437 total messages recorded across those journeys. Families have reached the Companion from 50+ countries, making this one of the larger continuously collected datasets of real-world GBM patient and caregiver questions outside the clinical setting. The latest de-identified a
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