HeyJaredBeyond the Diagnosis: Duchenne Perspectives
Beyond the Diagnosis: Duchenne Perspectives is a podcast series brought to the Duchenne community by Jett Foundation. The program's goal is to provide listeners with informative, supportive, and engaging content that goes beyond the medical diagnosis.
- Indexed episodes, last 90 days
- 1
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- Aug 4, 2026
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- Aug 4, 2026
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Advocacy in Action: Highlighting PJ's Protocol (opens the original)
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In today’s episode, we’re talking about Advocacy in Action, where lived experience meets meaningful change. In this episode, we’re joined by Brian Nicholoff, creator of PJ’s Protocol, and Rachel Shrader, Vice President of Clinical Care and Education at Parent Project Muscular Dystrophy. Together, Brian and Rachel share how advocacy moves from personal experience to practical action—improving care, empowering families, and creating lasting impact across the Duchenne community. This is advocacy in
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