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Beyond the Diagnosis

The Beyond the Diagnosis podcast was created by the Histiocytosis Association to give patients, families, caregivers and other members of the Histio Community the opportunity to have access to another educational resource to help them on their histio journey.

Podcast · By Histiocytosis Association · American English · Official site

Indexed episodes, last 90 days
2
Latest publication
Aug 26, 2026
Audience
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Earliest in this view
Jul 22, 2026
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Latest episodes

  1. Episode · Aug 26, 2026

    Episode 094 - The Power of AI in Drug Repurposing in RDD and Beyond w/ Dr. Luke Chen (opens the original)

    Episode notes · Positive tone

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    Welcome to Episode 091 of the Beyond the Diagnosis Podcast. Artificial intelligence is opening new possibilities in rare disease research, but what happens when we combine that technology with clinical experience, research, and a willingness to think differently? In this episode, Kathy talks with Dr. Luke Chen, a hematologist and Professor of Medicine at Dalhousie University and an advisor to Every Cure, about the power of drug repurposing and what it could mean for patients with Rosai-Dorfman d

  2. Episode · Jul 22, 2026

    Episode 093 - Meet the Team: Staff Highlight Series w/ Kristen, Our Chief Program and Development Officer (opens the original)

    Episode notes · Positive tone

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    Welcome to Episode 093 of the Beyond the Diagnosis Podcast. In this episode Kathy sits down with Kristen Nesensohn, Chief Program and Development Officer at the Histiocytosis Association, to talk about her journey, her many roles, and the impact of her work on the histio community. Kristen shares how she first found her way to the organization, what it means to support patients, families, fundraising, and outreach, and why she feels so connected to the people she serves. They also discuss the im

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