HeyJaredBehind the Episode: An Advocacy Podcast by Cure AHC
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Behind the Episode | Every Minute Counts: How One Child in Iceland Sparked a Global Movement (opens the original)
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Sigurður Hólmar Jóhannesson is the father of Sunna Valdís, who was born in 2006 and was diagnosed with Alternating Hemiplegia of Childhood (AHC). Sunna is the only person diagnosed with AHC in Iceland.Following her diagnosis, Sigurður founded the AHC Association of Iceland and later co-founded the AHC Federation of Europe, where he currently serves as President. He also co-founded the AHC International Alliance, bringing together patient organizations from around the world to advance collaborati
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