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Anti-Myelin Society Podcast

The Anti-Myelin Society Podcast features two women of color from the Black and Latino communities who have been diagnosed with Multiple Sclerosis (MS). The hosts, Jojo and Taty, share their experiences of navigating motherhood and building their careers while living with MS.

Podcast · By Anti-Myelin Society · American English · Official site

Indexed episodes, last 90 days
5
Latest publication
Sep 24, 2026
Audience
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Earliest in this view
Jul 30, 2026

Latest episodes

  1. Episode · Sep 24, 2026

    Disability Savings Account (opens the original)

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    Taty, Brika, and Jojo discuss ABLE savings accounts and how they may help people with disabilities protect their savings while receiving benefits. They also share honest stories about the financial challenges of living with MS, including medical bills, prescriptions, copays, and the everyday cost of staying healthy. Along the way, they bring plenty of humor, personal insight, and relatable conversations about chronic illness and financial survival.

  2. Episode · Sep 10, 2026

    MS Treatment Around the world (opens the original)

    Episode notes · Positive tone

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    MS care is not one-size-fits-all. Jojo, Brika, and Taty discuss what happens when treatment, cost, insurance, and access collide—and why some patients are looking beyond their own country for care.They explore the realities of living with multiple sclerosis, including diagnosis fears, plasma exchange, vision loss, insurance barriers, medical costs, stem cell treatment, and the challenges of finding care that supports a full life. The conversation is candid, informative, and filled with plenty of

  3. Episode · Aug 27, 2026

    Vision & MS (opens the original)

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    Blurred vision, double vision, and eye pain can be the first warning signs of MS, and if you ignore them, the damage can become permanent. Shabrika and Jojo get brutally real about what MS vision loss actually looks and feels like, why heat and stress can trigger flare-ups, and the treatment windows that can make or break your eyesight. Shabrika shares her own experience navigating optic neuritis, bilateral vision problems, and the terrifying moment her left eye went completely dark. She also ex

  4. Episode · Aug 13, 2026

    Exercise & MS (opens the original)

    Episode notes · Neutral tone

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    Struggling to stay active with multiple sclerosis? You're not alone, and there's hope. In this heartfelt, eye-opening episode, hosts Taty, Jojo, and our newest co-host, Shabrika uncover real stories from the frontlines of living with MS, chronic pain, and autoimmune disorders. Discover how fatigue, healthcare biases, and daily life hurdles can derail even the best intentions, but also hear practical, research-backed strategies to stay moving, protect brain health, and boost emotional wellness. Y

  5. Episode · Jul 30, 2026

    Season II Intro-HBD Jojo (opens the original)

    Episode notes · Positive tone

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    Discover how a diagnosis of MS, a rare condition, can unexpectedly lead to groundbreaking research opportunities, and how advocacy and resilience become your best tools. In this candid episode, Jojo hosts a lively panel with her co-host Taty and special guest Shabrika, sharing deeply personal journeys through illness, leadership, and navigating society's misconceptions. Shabrika, a resilient advocate living with multiple sclerosis, reveals the emotional toll of her recent hospital stay, her ongo

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