HeyJaredAndrew’s Substack
Follow the latest news on emerging brain tumour treatments with commentary from a 10+ year survivor of a high grade glioma. News features on metabolic treatments and novel therapies will be prioritised.
- Indexed issues, last 90 days
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- Sep 22, 2026
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- Jul 26, 2026
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A different kind of cancer conference (opens the original)
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Over the weekend I travelled to Oxford for something a little different: the first annual conference of the National Centre for Integrative Oncology (NCIO), held at the University of Oxford's Mathematical Institute.I’m used to attending cancer conferences, usually ones that are very academic, which, more often than not, can feel quite distant from the patient experience. That’s why I was delighted to hear about something different - a meeting that brings together oncologists, researchers and oth
Seizure glasses vs blue light blockers (opens the original)
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When I was diagnosed with a malignant brain tumour in 2013 I instantly found I became not just photosensitive, but also photophobic. How that manifested itself changed with time, but a degree of sensitivity persisted. Through my reading, I learned that the symptomatology can be similar to that experienced during a migraine. If that wasn’t enough, my circadian rhythms were shaken up by grand mal seizures and a cocktail of different anti-seizure drugs. Some of them, especially Keppra (levetiraceta
Time for change (opens the original)
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It’s my birthday today. I’m feeling reflective and thinking about what I really want from life, but also about how I can provide real value through what I have to offer others. In the days leading up to this moment, I noticed that I’d lost some of my spark. I’ve been focusing so much on work that I’d started to lose sight of many of the things that brought true meaning and purpose to my life. In life, I want to spend more time in nature, finding deeper meaning with others who share the same valu
A step forward for intranasal brain cancer drugs? (opens the original)
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Intranasal delivery of drugs to treat brain tumours makes a lot of sense. You effectively bypass the blood–brain barrier by providing a more direct route from the nasal cavity to the brain via the olfactory and trigeminal pathways. It sounds so simple - and logical! - but many attempts have been made over the years to come up with the magic formula, with mixed results. Even with such a direct route to entry, efficiently delivering drugs to the tumour remains elusive. But finally, following much
The value of water testing (opens the original)
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I just received my ‘Water Test Premium’ kit from IVARIO, an accredited water testing laboratory (ISO 17025) and a leading provider of comprehensive water tests in the UK. This was inspired by my last post on the gadolinium water contamination issue sweeping across Europe - and, to some extent, the rest of the developed world. I thought it would make sense to test my own water
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