HeyJared1 of 20 Podcast
Jonathan Sweeney was diagnosed with a rare genetic disorder that only 20 people in the world have. The condition is called 3 hydroxyacyl coa synthase deficiency, which in short compromises his immune system and his body cannot process fats.
- Indexed episodes, last 90 days
- 6
- Latest publication
- Sep 21, 2026
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- Earliest in this view
- Aug 10, 2026
Latest episodes
SMA-PME & Farber Disease: Mary Irwin & Dr. Reem Eissa (opens the original)
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Season 6, Episode 7: In Conversation with Dr. Reem Eissa & Mary Irwin About Reem: Dr. Reem Eissa is the founder of The Fight Farber Foundation, a clinical psychologist, and a devoted mother whose life was forever changed when her son, Zayd, was diagnosed with Farber disease. What began as a mother’s search for answers for her child quickly became a mission driven by love, urgency, and hope.With a professional background in clinical psychology and a deep understanding of child development, Reem b
Jenni Hargett: Team Cate (opens the original)
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Season 6, Episode 6: In Conversation with Jenni HargettJenni Hargett is an English instructor at Mississippi Delta Community College,wife to David, and mom to Ali, 19, and Cate, 11. As the parent of a child with arare disease, Jenni learned early on the importance of patient advocacy and thepower of having a community willing to stand beside you.Recent developments in Cate’s health have given that advocacy a new sense of urgency and purpose. Today, Jenni is committed not only to finding the stem
Stephen Sasaki-Samuels: Autism, Dadvocating & Beyond (opens the original)
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Season 6, Episode 5: In Conversation with Stephen Sasaki-Samuels He is a dad to two boys, ages 18 and 15, who lives in Japan with Junko, his “rock star” wife. In 2019, he experienced burnout. His life had reached a point where he began to realize that he was not being the person he wanted to be as a human, husband, or parent. Over the following months, through therapy, he began the process and journey of understanding what was going on with him and, importantly, why. His first son, Jamie, was bo
Rose Dallimore (opens the original)
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Season 6, Episode 4: In Conversation with Rose Dallimore I am honored to welcome Rose Dallimore, a restorative practitioner, writer, artist, and activist living with complex chronic illnesses, including rare spinal conditions and hypermobile Ehlers-Danlos syndrome. In this episode, Rose shares her journey through chronic pain, complex diagnoses, and two major spinal surgeries that changed her mobility and quality of life. We talk about navigating healthcare as a woman, the ways chronic pain is o
Huntington's Disease: Joyce Sireno (opens the original)
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Season 6, Episode 3: In Conversation with Joyce Sireno 🧬💜 I am honored to welcome Joyce Sireno, a longtime Huntington’s disease advocate whose family has been deeply impacted by the disease across generations. Joyce is at risk of having inherited Huntington’s disease. She has a 50/50 chance of having inherited the gene from her father, and if she has the gene, she will develop the disease. Huntington’s disease can cause motor and physical symptoms, cognitive decline, and behavioral changes. It h
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